Pages

Thursday, April 19, 2012

A Dark Promise


Most Thursdays I try to participate in Mama Kat's Writer's Workshop. She's always got great prompts and inspiration for writers. The prompt I chose for today is "A Promise." I decided to write about my rheumatoid arthritis. I hope it informs people a little better about what this disease is and what it's like to live with it. I think it can be read from the perspective of almost any autoimmune disease that causes pain. 

My Promise To You

I promise to greet you as you wake, and tuck you into bed each night.

I promise to always be new to you. You'll never get used to me, and yet, you'll always be tired of me.

I promise scores of medical bills. I promise referrals and labs and surgeries...I might not be your fault, but you'll be charged as if I am.

I promise well-meaning advice—“omega three fatty acids,” “holistic healing,” “yoga” and “gluten free.” Sometimes you’ll hang on with hope to the revelation unfolding before you; sometimes you’ll defend yourself with confidence that's lacking; sometimes you’ll be quiet--and wait for the subject to change. The statement "You don't understand," banging against clenched teeth. 

I promise medication. They promise its efficacy. I promise side effects. They promise they'll be worth it. I promise questioning your decision to take it. A panicked hesitation before each injection--a searing pain as it courses through your stomach or thigh. 

I promise a tug-of-war battle with depression. Whether its from the meds or the pain or the reality that is now your life, I promise that it will nag and pick at your frail happiness. Some days it might win. You may spend a birthday in bed--nursing your sorrow and swollen joints. A bathtub filled with epsom salt and tears. 

I promise you pain. Pain and pAiN and pain. Your lifelong companion, to have and to hold. Like a trained army that works as one, your body will gather its forces and attack. Pain like a sea with ebbs and flows. Pain that swells and bursts—crashing on bones and spitting salty tears on your face.

I promise misunderstanding. "But you don't look sick," "My grandma has arthritis," and "At least it's not cancer" washing you with bitterness and guilt.

I promise forever--a lifetime. Sometimes remission, sometimes reprieve--but I'll be lurking and waiting in the shadows of your sunny days.

Photo credit



9 comments:

  1. Wow. That was a great way to help those of us who don't live with this disease to see it more clearly. Thank you for sharing that.

    ReplyDelete
  2. Beautiful. Touching. Honest. Thank you.

    ReplyDelete
  3. I love you. I'm so sorry. You are a strong strong woman. Hang in there. You are never far from my thoughts and prayers. Miss you sis.

    ReplyDelete
  4. Thanks for baring your real thoughts.... Thanks for helping me understand just a little better.

    ReplyDelete
  5. Your writing is honest and hard to read for those who love you (like me). But I also know that "we have this treasure in earthen vessels, that the excellence of the power may be of God and not of us". Sometimes the cracks in our vessels make the treasure shine through even brighter:)

    ReplyDelete
  6. I am so very sorry. That is horrible. i remember a 12yo who was diagnosed with RA. Throughout my life I think of her -- and with the occasional little trouble with aches and pains in my joints, I so wonder how in the world she did.

    ReplyDelete
  7. As I read this I began to understand the connection between depression and chronic illness as something that would be very difficult to avoid. The constant onslaught of symptoms and reminders of illness must really wear on a soul.

    ReplyDelete
  8. Great take on the prompt as well! For a while, doctors thought I may have a RA, but it seems to not be the case as of now. Wishing you many healthy, painless days.

    ReplyDelete
  9. I wake up every day wondering if my shoes will fit, if I can walk, if I can sit at my desk at work without taking a maximum dose of Ultram. And I am bitter sometimes. "But you don't look sick" is the worst thing you can say to me.

    ReplyDelete